Dear Visitor,

As the lead for the national NMO service in the UK I am delighted at the launch of a charity for patients with NMO and for choosing to support our research.

Neuromyelitis Optica is a serious disabling condition affecting the nervous system particularly the optic nerves and the spinal cord . The most seriously affected persons can be paralysed in all four limbs and may lose sight in both eyes. Thankfully it still remains a relatively rare condition compared to Multiple Sclerosis but the distinction is important as it is a much more severe illness and its treatment is markedly different. A wrong diagnosis treatment can lead to serious consequences.

New treatments are on the horizon and older treatments and treatment strategies are being redefined.   But we desperately need to raise awareness of this devastating disease, better diagnostic tests and treatments during an attack and effective treatments that would prevent further episodes and hopefully a cure.

The UK service for Neuromyelitis Optica in the UK is based currently at two centres in Liverpool (Walton Centre) and Oxford (John Radcliffe Hospital).  The researchers in UK have published several landmark studies that have shaped the way Neuromyelitis Optica is diagnosed and treated worldwide.

Though the number of patients has been rising worldwide there are very few dedicated charities. Without continuing financial support our research and training will dwindle and the momentum gathered over the last few years falter. At a time when Governmental funding for scientific research for rare disorders is hard to come by charities such as this are a godsend. I would therefore appeal to everyone to contribute generously.

Best wishes,

Dr. Anu Jacob MD, DM, FRCP
The Walton NHS Trust, Liverpool,
United Kingdom



Working for you and with you. Our mission? The cure.


Back Row (L-R)

Nabeela AhmadAdmin Assistant, Dr Patrick WatersSenior postdoctoral Scientist, Catherine PollardAssistant psychologist

Middle Row

Annaliza RyeNMO Service CoordinatorMacirj JurynczykResearch FellowGeorge TackleyNMO Clinical FellowEmily GerransPhysiotherapistJackie ThomasNMO Co-ordinatorVal TrimbleOrthoptist

Front Row

Dr Saleel Chandratre - Consultant Paediatric NeurologistDr Anu Jacob –  Consultant NeurologistDr M Isabel LeiteHonorarary Consultant NeurologistDrJackiePalaceConsultant NeurologistKerry MutchNMO Nurse Practitioner

Read the stories of NMO sufferers…

trishWelcome to NMO-UK, It has long been my dream to establish, with the help of sufferers and family members like myself, a charity that will both support sufferers and raise awareness of this terrible disease.

Well here we are, finally. I say finally but this is just the beginning of a journey where we hope every person who suffers in anyway due to this, at present, incurable disease, will join us in our efforts to raise support for the grant procedure (as detailed in Visit NMO-UK section of the web site).

Although we have reached this stage without any additional funding, we now need to turn to the business community and work in partnership with those who are kind enough to support with their advertising on this site and in future publications. Without the support on a national or county basis none of this would be possible. Please take the time to tour our site as a sufferer, supporter or family member. Assist us to do what needs to be done in the ongoing fight against this terrible disease.

Tricia McCann


Visit the Rare Illnesses section of the site


The Rare Illness Research foundation are in the process of compiling a register of rare life threatening or debilitating Illnesses that affect infants, children and adults across the UK.

Our energies will be focused on providing direct support for sufferers, carers and family members facing up to the reality of being diagnosed with what is classed as a rare illness that at this point in time has no cure.

Through our grant procedure we will provide direct financial support in accordance with our Aims and goals and through our forum a point of contact so sufferers across the UK can share stories and experiences with others in a similar position.

Please visit The Rare Illness Research section through our home page for further details.




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