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NMO Patient Group Meeting

NMO Patient Group Meeting Jurys Inn, Edinburgh Wednesday 28th September – 19.00 hrs NMO is a rare condition and many of you may feel isolated. Would you be interested in meeting others going through similar experiences to you? * To

Posted in NMO

Introducing Everis

INTRODUCING NMO SPECTRUM UK’S VERY OWN SOUTHERN SOUL SENSATION Everis has very kindly agreed to come on board as a vitally important member of our community, inspired by Tia-Grace Ray. His latest soon-to-be-chart-topping release, available through our online shop, Love

Posted in NMO

NMO SPECTRUM UK – 2015 – A YEAR TO REMEMBER

Special appreciation must go to Kevin Beadell and his family. After the loss of his Father, Terry, in December 2013, Kevin, his family and team have done so much to further our cause, commencing with a four-day event including three

Posted in NMO, Uncategorized

NEWS UPDATE

In our last post concerning the heroics of John and his team mates, Tony Dodsworth and Martin Behan, and their unbelievable exertions in support of NMO Spectrum-UK, I happened to mention that John and his team had completed the lap

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2015 National Conference and Patients’ Day

It was, once again, a pleasure for both me and for Trish to meet friends old and new at this year’s National Conference and Patients Day – but we are mindful of the many who for numerous important reasons couldn’t attend, and

Posted in NMO

HEIDI, SPEEDS TO NEW RECORD DONATION

Patient takes on the Speed luge for NMO…… what’s NMO?! My name is Heidi and I was diagnosed with NMO around a year and a half ago so it’s a subject very close to my heart. However, I was surprised

Posted in NMO

Regulatory Workshop on Clinical Trials Designs

The Regulatory Workshop on Clinical Trials Designs in Neuromyelitis Optica (NMO) and Spectrum Disorders brought together patient representatives, healthcare professionals, regulators, pharma and ethicists to discuss trial designs in neuromyelitis optica (NMO), a rare neurological disorder. For evidence of efficacy, in NMO,

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Local blues man’s gig for charity

Local Blues Man comes out of retirement to gig for charity Head down to The Granby Arms, Uppermill, on Saturday 28th of March at 5.00pm for a real Blues treat! Local singer/songwriter JSL, and friends, will be playing in aid

Posted in NMO

NMO at the Manchester 10K

Congratulations to Dr Anu Jacob along with his son Abraham and friends Ceena Jose and Joseph Francis for flying the NMO flag at The Manchester 10K May 2014, not only the first to promote awareness of our new charity and

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John Loyden’s EP for NMO

JSL releases Walton Blues EP in support of NMO-UK. That’s John S Loydon not JLS (sorry kids). John has gone to a great deal of effort to write, sing, produce and publish this EP with the help and patience of

Posted in NMO

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