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NM0 CONFERENCE AND PATIENTS DAY

NMO PATIENT MEETINGS

FRIDAY 8th MAY AND SAYURDAY 9th MAY 2015

ASTON CONFERENCE CENTRE, ASTON UNIVERSITY

BIRMINGHAM

ENCLOSED IS A DRAFT PROGRAMME FOR THE SATURDAY INCUDING THE OPTION TO COME DOWN

THE NIGHT BEFORE AND MEET UP WITH OTHER SUFFERERS AND THEIR FAMILIES!

A BIG HIT LAST YEAR

DRAFT PROGRAMME FOR SATURDAY  NMO PATIENT DAY.

  • 9.30-10.00      REGISTRATION AND COFFEE

  • 10.00-10.15    INTRODUCTION, NMO IN DIFFERENT AGE GROUPS- DR ISABEL LEITE

  • 10.15-10.30    CLINICAL RESEARCH PROGRESS AT JOHN RADCLIFFE- DR GEORGE TACKLEY

  • 10.30-10.45    CLINICAL RESEARCH UPDATE FROM WALTON CENTRE-DR SHAHD HAMID

  • 10.45-11.00    LABORATORY RESEARCH UPDATE- DRS MARK/PADDY/ANGELA

  • 11.00-11.15     CLINICAL TRIALS AND TREATMENTS- DR ANU JACOB

  • 11.15-11.45     ASK THE EXPERTS CLINICAL PANEL ONE- CHAIR DR JACKIE PALACE

  • 11.45-12.30    LUNCH

  • 12.30-13.55   WORKSHOP SESSIONS

  • 14.00-14.20  COMFORT BREAK

  • 14.20-14.55    WORKSHOP SESSIONS

  • 15.00-15.15    NMO-UK RESEARCH FOUNDATIONS/NMO SPECTRUM UPDATE-  PATRICIA McCANN ANTHONY HUGHES

  • 15.15-1545     ASK THE EXPERTS CLINICAL PANEL TWO CHAIR- DR ANU JACOB

  • 15.45-1600    SUMMARY OF DAY, MOVING FORWARDS- DR JACKIE PALACE  

SUGGESTED AFTERNOON WORSHOP SESSIONS

INTRODUCTION TO MNO AND TREATMENTS.  AN EXCELLENT OVERVIEW OF NMO ESPECIALLY APPLICABLE TO PATIENTS RECENTLY DIAGNOSED WISHING TO GAIN MORE UNDERSTANDING OF NMO

 

LIVING WITH AND UNDERSTANDING NEUROPATHIC PAIN

BEING ACTIVE – EXERCISE VERSUS FATIGUE

STRESS AND RELAXATION – BEING IN CONTROL WITH MINDFULNESS

FAMILY MEMBERS ARE IMPORTANT TOO – PRESENTATION OF FINDINGS FROM INTERVIEWS PARTNERS AND DISCUSSION OF YOUR CONCERNS.

DISABILITY RIGHTS AND BENEFITS.

EFFECTS OF BLADDER AND BOWL DYSFUNCTION – DISCUSSION OF FINDINGS FROM QUESTIONNAIRES AND IMPACT ON QUALITY OF LIFE.

IF YOU HAVE ANY OTHER SUGGESTIONS WITH REGARDS TO AFTERNOON WORKSHOPS OR QUESTIONS YOU WOULD WISH TO PUT TO OUR PANEL OF EXPERTS THEN PLEASE EMAIL EITHER nmo.advice@thewaltoncentre.nhs.net or info@nmo-ukresearchfoundation.org

WE ACKNOWLEDGE THAT COMING TO BIRMINGHAM FOR ONE DAY IS BOTH LONG AND TIRING WE ALSO RECOGNISE THAT NMO IS A RARE CONDITION AND MANY OF YOU MAY FEEL ISOLATED NOT HAVING THE OPPORTUNITY TO MEET OTHERS AND RELATE TO THE UNDERLYING WORRY OF WHEN THE NEXT RELAPSE MAY HAPPEN.

THIS YEAR WE HAVE RESERVED TWENTY ROOMS, INCLUDING FOUR LEVEL ACCESS FOR FRIDAY THE 8th MAY AT THE ASTON CENTRE, IF YOU WISH TO STAY THE FRIDAY NIGHT THE COST OF ROOMS IS,  DOUBLE B&B £89.00 – SINGLE B&B £79.00

PLEASE BOOK DIRECT THROUGH THE ASTON CENTRE

0121-204-4300

MANY THANKS FROM THE NMO TEAMS AT OXFORD AND LIVERPOOL, WE LOOK FORWARD TO SEEING YOU AT THE MEETINGS.

 

 

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One comment on “NM0 CONFERENCE AND PATIENTS DAY
  1. Chris Cooper says:

    My wife suffers with NMO but doesn’t have the anti-body. I attended the NMO Patient meeting at Bimingham with her and have to say how understand EVERYONE was both with how my wife as affected and how I being the primary carer was feeling. We spoke to so many people who were keen to share their experiances and to share their support. The key thing I personally took away from the event was that you are not alone, if you haven’t been to one of these events, go! really inspiratioinal so many fantasic people who have NMO but through there strenght of mind have not let it get the better of them. Thank you so much for putting this event on.

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