NMO Trustees
My name is Trish, I am a mother of a beautiful daughter who suffers this terrible illness, it has long been my dream to be involved in a charity to support the sufferers of NMO, little did I know that I would be involved as its founder.
It’s been a long road to get here since its conception but I don’t treat this as the end, rather the beginning, the beginning of the real reason we are here, to find the cure and to ensure that no one suffers alone.
John Loydon
Hi! I’m a retired teacher who was diagnosed with NMO Spectrum disorder in 2010, though I had suffered unexplained symptoms for the preceding 10 years or more. I feel privileged to have been invited to become a Trustee.
Tony usually refers to me as ‘Mr Blues’ because of my interest in writing, recording, and performing Blues music. Please take a look at my web site: www.iwokeupthismorning.co.uk. You can contact me via my website, or at [email protected]
Hi, I’m Parveen Panesar and was diagnosed with MMO Devic’s disease in 2004 after suffering a severe relapse which left me paralysed from the neck down. Prior to this since 2001 I had optic neuritis and areas of numbness in my limbs with spasms and tingling. I was fortunate enough to recover from the major relapse which has unfortunately left me unable to see through my right eye, unable to walk without an aid and a wheelchair user. Despite all that comes with this illness I try to remain positive. It is an honour for me to be part of this charity as a trustee and I will endeavour to support enthusiastically and tirelessly in order that one day there will be a cure, having experienced first hand how this debilitating illness can change one’s life over night.Parveen Panesar
Elaine Loydon
As the wife of John, a sufferer of MNO, I am fully aware of the devastating effects of this condition. I was very pleased to be invited to take up the role of Trustee and I am looking forward to doing everything I can to support this charity.
Claire Horan
Originally from New Zealand, Claire has lived in the UK for the last 14 years. Claire has work across the globe as a event manager and producer of large scale festivals, circus and theatrical shows. She worked for London 2012 and The Heritage Alliance to deliver the Discovering Places campaign, to inspire people across the UK to discover their local built, natural and historic environments. Passionate about audience development and connecting people and places she now work as a freelance consultant in the Heritage, Arts and Culture sector.
Her brother was diagnosed with NMO in New Zealand in August 2012 and this has motivated her to become a part of the NMO-UK Rare Illness Research Foundation. Bringing her skills and experience in fundraising, marketing campaigns and event producing to the foundation and help raise the awareness of NMO and work towards a cure.